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That THING on my Mom’s Brain

That THING on my Mom’s Brain is a children’s book that my son (Noé) and I created together in 2015.  This is our story about the grand mal seizure I had while we were reading together in his bed two weeks before his ninth birthday.  Noé illustrated the book and it is written from his point of view.  In this book we share a real but simplified version of the seizure, the diagnosis, the biopsy, the craniotomy and the recovery.

We wanted 100% of the proceeds from the sale of the book to go toward brain tumor research and financial support for brain tumor patients so we donated it to, The Musella Foundation for Brain Tumor Research & Information, a 501(c)3 public charity that is dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research.  To date, the book has generated thousands of dollars!

Not only did creating this book become a way for us to thank the very people who supported us through everything, but it also became a crucial step toward our healing. Developing this book gave my son an opportunity to fill me in on the details I couldn’t recall and then we were able to discuss how the events affected both of us.

By the way, Noé is a few years older and still loves to draw.  He would like you to know his artwork is much more advanced now.

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