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The Come Back

I’m back! After nearly eight months of little to no physical activity, I am proud to announce that I returned to exercise two weeks ago. I was in a lot of pain and it took a great deal of time and energy to figure out the cause and then to take care of it via another major surgery followed by…

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No Seizure Today Happy Dance

Imagine it’s two weeks before your ninth birthday and your mom (who did not have a previous history of seizures) is reading with you in your bed when she suddenly starts shaking and turning bright red.  Her eyes are wide open and she doesn’t blink or speak.  She is suddenly frozen in a fetal position.  Eventually, red drool drips out…

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It’s All About S.P.O.T.

(Originally posted on December 8, 2014, in a closed Facebook group by Jenn Murphy–my BFF from Hawaii) Wendy’s “S.P.O.T. ON” Update. . . (Santana’s Perishing Oligodendroglioma Tumor) Well, our adorable Wendy arrived at her Pre-Surgical appointment today fashioned in a cute little white Fila vest, Vanilla flats with a wrist accessorized with a snow-colored Michael Kors watch.  (I guess she…

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Moving Forward

It took me a while to learn how to live my life in between MRI’s.  For the first two years after the craniotomy, the MRI’s were every few months, so I was literally living from MRI to MRI.  Anytime I had a pain in my head or experienced dizziness my thought was the brain tumor must be back!  I often forget…

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Humor

After we received my biopsy results and learned that a craniotomy was imminent, I decided to create a closed Facebook group to keep friends and family in the know about the situation.  Looking back, it seems I returned home from that first week in the hospital with my “offbeat sense of humor” fully intact. When I heard I had an…

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